Our Story

October 8, 2022 @ 11:00 AM Central Time (USA) 2 hour Closing Ceremony
The last two years have hit the rare disease community particularly hard, leaving patients without access to support, and in some cases, treatment. For individuals diagnosed with dystonia, a rare brain disorder, access to information and opportunities to connect with others is critical. By partnering with the Dystonia Medical Research Foundation (DMRF) you can help connect those living in isolation while educating the public about this often-misdiagnosed disorder. The first Virtual Dystonia Zoo Day was an overwhelming success attracting 2,500 participants from 50 US states and nine countries and generating more than 160,000 views on social media. Given the reach of the event, the enthusiasm and awareness generated through collective action, the DMRF is planning to host a third Virtual Dystonia Zoo Day. This time we are changing things up to give you the opportunity to join with DMRF supporters across the country.

What are Dystonia Zoo Days?
Dystonia Zoo Days are part of a national campaign that promotes awareness of dystonia, connects the dystonia community, and supports the work of the DMRF. The campaign includes local community events and virtual components that reach people in all 50 states. By bringing together medical experts, public servants, and members of the dystonia community to share their stories and raise awareness in a family-friendly, fun environment, Dystonia Zoo Days provide individuals and families affected by dystonia, their friends and colleagues, and medical professionals, the chance to connect.

What is Dystonia?
Dystonia is a rare brain disorder that causes extreme muscle spasms so intense they produce involuntary movements and postures of the body and limbs. Gait, balance, speech, and vision may be impaired due to the twisting, painful contortions. Put quite simply, people with dystonia cannot control the movement of their own bodies. The disorder affects people of all ages and backgrounds. Because it is often misdiagnosed, patients can spend years without proper treatment. You can help the DMRF change this.

About the DMRF
The DMRF is the oldest, most established dystonia patient organization in the world and is an internationally recognized leader in dystonia providing services to individuals and families impacted by all forms of dystonia. 

Contact the DMRF
Dystonia Medical Research Foundation / One East Wacker Drive, Suite 1730, Chicago, Illinois 60601-1980
Phone: 312-755-0198 / Toll Free: 800-377-DYST (3978) / Fax: 312-803-0138
zooday@dystonia-foundation.org / www.dystonia-foundation.org / EIN#95-3378526

 

 

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