Our Story
What are Dystonia Zoo Days?
Dystonia Zoo Days are part of a national campaign that promotes awareness of dystonia, connects the dystonia community, and supports the work of the DMRF. The campaign includes local community events and virtual components that reach people in all 50 states. By bringing together medical experts, public servants, and members of the dystonia community to share their stories and raise awareness in a family-friendly, fun environment, Dystonia Zoo Days provide individuals and families affected by dystonia, their friends and colleagues, and medical professionals, the chance to connect.
What is Dystonia?
Dystonia is a rare brain disorder that causes extreme muscle spasms so intense they produce involuntary movements and postures of the body and limbs. Gait, balance, speech, and vision may be impaired due to the twisting, painful contortions. Put quite simply, people with dystonia cannot control the movement of their own bodies. The disorder affects people of all ages and backgrounds. Because it is often misdiagnosed, patients can spend years without proper treatment. You can help the DMRF change this.
About the DMRF
The DMRF is the oldest, most established dystonia patient organization in the world and is an internationally recognized leader in dystonia providing services to individuals and families impacted by all forms of dystonia.
Contact the DMRF
Dystonia Medical Research Foundation / One East Wacker Drive, Suite 1730, Chicago, Illinois 60601-1980
Phone: 312-755-0198 / Toll Free: 800-377-DYST (3978) / Fax: 312-803-0138
zooday@dystonia-foundation.org / www.dystonia-foundation.org / EIN#95-3378526