Event Details
We are pleased to announce a new program, the Virtual "You" Day — a thoughtfully designed experience focused on you! This new program includes expert-led informational sessions, mental health check-ins, self-care tools, and open Q&A discussions, all geared toward empowering and uplifting the members of the dystonia community.
Dystonia Virtual You Day is a true community effort, and your voice helps amplify the impact. The more people who join us, the stronger our message becomes. Invite your friends and family, host a watch party, and most importantly, share the event link far and wide!
How it Works
Join with DMRF supporters across the country to raise awareness of dystonia, funds to support the DMRF & connect the community so that no one has to face dystonia alone. As a “Mover and Shaker” in the dystonia community, you are creating change every single day by raising awareness, sharing your story, and helping others feel seen. The progress we’ve made wouldn’t be possible without your voice, your strength, and your commitment. But making change also takes energy and that’s why self-care matters! Taking care of yourself isn’t just important, it’s essential. By prioritizing your own well-being, you’re not only protecting your strength, but you’re also fueling your ability to keep making a difference.
The cost to register for this event is free. Registration is required so the link can be sent to you to access the event.
The DMRF is pleased to announce a partnership with our longtime T-shirt vendor, Xtreme Apparel. These newly created “Mover & Shaker” T-shirts honor all in our community who are making things happen and working to improve the lives of all affected by dystonia. If you would like to purchase an exclusive t-shirt, please visit our store here!
Date and Time
The event will take place right here on this website on September 30, 2025 at 7:00 PM ET.
About the DMRF
The DMRF is the oldest, most established dystonia patient organization in the world and is an internationally recognized leader in dystonia providing services to individuals and families impacted by all forms of dystonia.
Contact the DMRF
Dystonia Medical Research Foundation / One East Wacker Drive, Suite 1730, Chicago, Illinois 60601-1980 Phone: 312-755-0198 / Toll Free: 800-377-DYST (3978) / Fax: 312-803-0138
dystonia@dystonia-foundation.org / www.dystonia-foundation.org / EIN#95-3378526